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Conference Discussion [Autism2006]
Moderator: System
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cindy |
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Trish Bennett |
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Haylee Linde |
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wendy skinner |
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18-Oct-06 13:48:05 GMT |
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Renee Poirier |
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Caroline Dillon |
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DEBRA SQUIRES |
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09-Nov-06 03:58:12 GMT |
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| I HAVE A SON WHO IS 13 AND HAS ASPERGERS MY NEW BABY IS 12 MONTHS OLD AND SHOWING SIGNS OF AUTISM I AM TOLD HE WILL NOT BE TESTED UNTIL E IS THREE IS THIS NORMAL SURLY IF HE WAS DIAGNOSISED EARLIER WE COULD GET THE HELP HE NEEDS |
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J B |
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I totally agree with you. Early diagnosis would be best. Supposedly that's what is supposed to happen here as well. Hopefully it really has changed in the past few years but it sure wasn't what I'd experienced. I kept stating something was different about this baby we rec'd when he was 4 months. But he'd had some trauma & they said I was just being worried. I kept trying..they kept saying
..nope, he's fine. He had super gross & fine motor control, knew where his body was in space and so on. "They" weren't even too concerned when he lost his speech.
At 7, basically to shut me up I think :) the private school agreed to let the diagnostic pediatrician who contracted with them check him out. ... she ended up sending him for more tests & interviews with other diagnostic doctors ....final diagnosis was Aspergers with a bunch of other things.
But we didn't wait for any diagnosis - didn't have a clue that there was even such a thing as Aspergers or HFA - all I knew was that I had to keep that lil guy from going permanently into whatever place he went. 'Had to somehow ease that pain he seemed to feel at the strangest times. So we worked with him by guess and by golly - a lot. He's almost 13 now like your son and doing pretty well considering a lot of things he's had to go through. (not the ASD)
What I suppose I'm saying is to continue what you probably already are doing. If you sense there is a similarity of "autism signs" , then use every technique you can til he's 3 - have that appointment made/waiting for the day after his 3rd birthday. Use touch, massage his legs, his arms...stimulate him some (but not too much), continue eye contact, play peek a boo, everything you would for a regular babe but more consistently & probably a bit more. Like I said, you're probably already doing that so that's great.
And keep asking for someone qualified in "early intervention" to give him a checkup at the least; keep reminding them that autism tends to be genetic & that his older brother is on the spectrum - reminders sometimes help.
Perhaps check out sites on how to advocate - they explain that one should have facts in order, be calm, consistent....and not give up on asking. Follow up on calls made, get more facts & restate the old as well.
Maybe they'll get tired of you calling to ask for an 'early intervention' diagnosis if not the therapy which also goes with it. And if they really get tired of you calling to ask, of you finding out whom to write letters to in order to get this service, then maybe they'll just book you that appointment!!
Good luck.. |
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