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Pre-seminar discussion
Author : System, 2 Oct 2004 14:36
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chances of non-autistic sibling having autistic offspring
Author : Debbie Dayton, 4 Oct 2004 11:48
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My 4yr old and Aspergers
Author : Mrs E Carey, 4 Oct 2004 13:02
My 4 yr old has Asperger syndrome, however i do not feel that his needs are being met at his present school.
I feel he would benfit more from having one to one sessions, but how do i go about seeing to this. Also just recently the last 6-8 weeks we have noticed him swearing quite a lot. Me and his father don't swear and he seems to come out with it quite often and words that are considered very bad.
Is this part of asperger or is there something else to it. He also has routines or obssessions which he has to do when we are out and in the house. If they are not done correctly he becomes very angry frustrated swears shouts and hits me or his father. The obssessions and bad behaviour are becoming more frequent so is this part of Aspergers aswell or something else.
Thankyou |
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Author : Anthony Bailey, 4 Oct 2004 14:21
Dear Mrs Carrey,
With regard to your sons's educational needs, you are probably aware that there is now a very comprehensive code of practise for asessing children with any sort of special needs. The SENCO at the school should be able to provide you with all the details. If you or the school think that he needs extra help to progress satisfactorily then the code contains procedures to assess what and how much extra help might be needed.
With regards to the routines and obsessions, these are an intrinsic part of the disorder, although often they ebcokme more evident as children develop. In the first instance your GP or health visitor might be able to provide advice on dealing with these. Alternatively a local clinical psychologist should be able to provide you with strategies for dealing with the obsessions and his upset when they can not be performed.
Possibly your son has heard swearing outside the home and may have observed that the words tend to produce either attention or a change in peoples behaviour. By and large the best strategy for dealing with this is to ignore it, although I understand that is not always so easy in public places. Again if the problem escalates a local psychologist should be able to provide some helpful advice.
Best wishes
Tony
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Author : Anthony Bailey, 4 Oct 2004 14:21
Dear Mrs Carrey,
With regard to your sons's educational needs, you are probably aware that there is now a very comprehensive code of practise for asessing children with any sort of special needs. The SENCO at the school should be able to provide you with all the details. If you or the school think that he needs extra help to progress satisfactorily then the code contains procedures to assess what and how much extra help might be needed.
With regards to the routines and obsessions, these are an intrinsic part of the disorder, although often they ebcokme more evident as children develop. In the first instance your GP or health visitor might be able to provide advice on dealing with these. Alternatively a local clinical psychologist should be able to provide you with strategies for dealing with the obsessions and his upset when they can not be performed.
Possibly your son has heard swearing outside the home and may have observed that the words tend to produce either attention or a change in peoples behaviour. By and large the best strategy for dealing with this is to ignore it, although I understand that is not always so easy in public places. Again if the problem escalates a local psychologist should be able to provide some helpful advice.
Best wishes
Tony
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Sleep disturbance in ASD/Aspergers & Autism
Author : Dr Jeremy Black (GP), 4 Oct 2004 13:50
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Asperger's but no difficulties in reading facial expression
Author : Laura, 4 Oct 2004 14:13
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Okay aside from genetics do you believe there are other factors at work here
Author : Carol Johnston, 4 Oct 2004 14:17
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Mercury - differences in connectivity between particular brain regions
Author : Dan, 4 Oct 2004 14:24
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Asperger's Sybdrome and Early Onset Bipolar Disorder
Author : Vicci Morris, 4 Oct 2004 14:39
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Why is there no assistance for adults with Asperger's Syndrome?
Author : Matthew, 4 Oct 2004 15:08
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Buying a property
Author : Sjöjungfru, 4 Oct 2004 17:11
Are there any sources of support for getting onto the property ladder? You only need to watch the numerous property programmes on TV to realise that even the most neurotypical of neurotypicals with supportive partners find buying a property very stressful. So what about people with Asperger syndrome? Is it assumed that if we can hold down a job we can jolly well get off our backsides and go it alone? Where are Kirstie and Phil for the autistic community?
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Biological causes of "tantrums" in Autism?
Author : , 4 Oct 2004 17:36
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Diet Intervention
Author : Pat, 4 Oct 2004 17:47
On behalf of a parent with a young adult son with autism: does diet intervention really have a beneficial effect? If so, what guidelines would you suggest when deciding which diet is best?
How effective are supplements? eg vitamin B6? I would appreciate it if you cold give us some direction. |
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aspergers
Author : susan booth, 4 Oct 2004 20:06
My son is 13 years old. He has had chronic bowel problems from birth. He has been treated with 30ml of Senakot for a number of years. I am increasingly concerned that this problem hasn't been resolved. My son will not even contemplate eradicating dairy from his diet. He is a huge fruit eater. I have been advised that he should have a biopsy to check the enzymes in his small and large intestine.
The thought of an injection causes my son to become extremely, stressed not allowing anyone near him. It has been suggested that I change from Senakot to Movicol.
Is there any advice you can give on how I can resolve this long-term and very upsetting condition which my son has to contend with?
Another point, my son also has sleep problems and takes 10mg of melatonin, however, this is becoming less and less effective and he can still be found awake at 2.00 a.m. Who would I need to speak to concerning sleep disturbances to find out the root causes?
Many thanks
S. Booth |
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Interaction beween genes and environment
Author : Margaret Collins, 4 Oct 2004 21:43
Dear Professor Bailey, long before I knew my son had autism I knew he had been exposed to high levels of lead in infancy (and probably before birth). We had hair analysis done after he developed Infantile Spasms. The results that came back showed we both had massive amounts of lead in our hair. I showed these to the GP who said hair analysis was unreliable, but ordered a blood test just to see. My baby's blood lead level at 10+ months corrected age was at twice the current paediatric reference level (and researchers into effects of lead on children's IQ and reading ability want the current reference level cut in half). This worrying finding was left "hanging in the air" - no-one in the NHS knew what to do with it. I was advised by the "alternative" organisation that had carried out the hair test to stop breastfeeding at once. I was given no advice by the NHS. Not long after I had stopped nursing, my son's hair lead and blood lead levels had both declined by about half. My son had been premature (although a good weight and with no apparent problems apart from jaundice) and had suffered a severe local adverse reaction to the first DTPHib (which he recieved at only two weeks corrected age). He suffered a severe general reaction to the second dose. His third dose of first year vaccines left out the pertussis element, but he still received 25mcg of mercury in the DT and possibly another 25mcg with the Hib. Unfortunately, it is known that the damaging effects of either lead or mercury are made much worse when they are both present. Do you know anyone in the UK looking into this sort of thing, please? Researchers in the US say that there is commonly a genetic problem found in autistic children which leads to impairment of (or total inability to) excrete heavy metals from the body. This sounds as though it could be very relevant in this case! (Why was he getting so much lead from me, too - a genetic weakness leading to it being stored in the bones and only excreted along with the calcium during prgnancy and lactation? - I still have frozen samples of milk, kept in case anyone wants to test their lead content some day). |
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Interaction beween genes and environment
Author : Margaret Collins, 4 Oct 2004 21:43
Dear Professor Bailey, long before I knew my son had autism I knew he had been exposed to high levels of lead in infancy (and probably before birth). We had hair analysis done after he developed Infantile Spasms. The results that came back showed we both had massive amounts of lead in our hair. I showed these to the GP who said hair analysis was unreliable, but ordered a blood test just to see. My baby's blood lead level at 10+ months corrected age was at twice the current paediatric reference level (and researchers into effects of lead on children's IQ and reading ability want the current reference level cut in half). This worrying finding was left "hanging in the air" - no-one in the NHS knew what to do with it. I was advised by the "alternative" organisation that had carried out the hair test to stop breastfeeding at once. I was given no advice by the NHS. Not long after I had stopped nursing, my son's hair lead and blood lead levels had both declined by about half. My son had been premature (although a good weight and with no apparent problems apart from jaundice) and had suffered a severe local adverse reaction to the first DTPHib (which he recieved at only two weeks corrected age). He suffered a severe general reaction to the second dose. His third dose of first year vaccines left out the pertussis element, but he still received 25mcg of mercury in the DT and possibly another 25mcg with the Hib. Unfortunately, it is known that the damaging effects of either lead or mercury are made much worse when they are both present. Do you know anyone in the UK looking into this sort of thing, please? Researchers in the US say that there is commonly a genetic problem found in autistic children which leads to impairment of (or total inability to) excrete heavy metals from the body. This sounds as though it could be very relevant in this case! (Why was he getting so much lead from me, too - a genetic weakness leading to it being stored in the bones and only excreted along with the calcium during prgnancy and lactation? - I still have frozen samples of milk, kept in case anyone wants to test their lead content some day). |
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Asperger's and Mood Disorder
Author : Alta Rens, 4 Oct 2004 21:46
I am working with a 12-year old male student who is diagnosed with Asperger's syndrome and ADHD (medicated with Ritalin). Over the past year we have noted changes in mood. He frequently goes home crying, becomes very clingy and dependent on his mother and talks about wanting to die. This behaviour can change unpredictably to what seems like manic behaviour. If prevented from doing something e.g., having his cat present in the room, he becomes so fixated on the cat that his agitation levels rise to the point where he can become physically aggressive towards others. This behaviour is often accompanied by laughter and lots of energy. He is currently treated with Tegretal in an attempt to manage this behaviour but we have not noted significant improvements. There appears to be similarities between the executive functioning difficulties associated with Asperger's and Bipolar Disorder. Is it possible for a co-occurrence of Asperger's and Bipolar? Is there a clear way to differentiate between the two disorders? |
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Peptides
Author : G Steadman, 4 Oct 2004 22:02
Could I have some professional input here on the research being carried out around the world inc UK on the presence of petides in the urine of ASD individuals. Just how close is this to becoming published in peer reviewed journals? Many GP's, even consultants are disregarding its worth I believe without hesitation. No smoke without fire? |
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asperger genes or environment?
Author : elaine moore, 4 Oct 2004 22:55
I am an adult with aspergers and my 5 year old son has been provisionally diagnosed as having aspergers as well. My question is simple: my son is not apparently as affected as I am, so is it possible that he hes "learned" some autistic-type behaviours from me rather than physically inherited it? No one has as yet been willing or able to answer this question for me. |
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PDD-NOS
Author : Stacey, 4 Oct 2004 23:35
My son was diagnosed with PDD-NOS because he met most but not all the criteria for Asperger's. He is high functioning and attends public school with a teaching assistant. Any suggestions for the future regarding education? He also has hyperlexia, which I am told is extremely common in high functioning autistic children, which makes it extremely difficult to understand how much of what he reads he actually comprehends.
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autism genetics
Author : michelle boles, 5 Oct 2004 0:30
Dear Professor,
We have a 14 yr old who is gradually deteriorating.he is severley intellectually impaired,has developed Cerebral palsy,low muscle tone,scoliosis, high myopia increased risk of retina detachment,has had a MACE operation,has a Bard peg, no communication. Are all these things common in these children, basicaly can you suggest anything. We see a genetic spec in brisbane australia and he is stumped. Thank you michelle |
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Great people at risk
Author : fran williams, 5 Oct 2004 12:28
It is probably, if not certain, that some of the greatest scientists and engineers have had ASD. Our civilization doesn't evolve at a steady pace but in leaps and many of these people have been responsible for these leaps of progress. If a genetic basis for autism is discovered and people wth ASD start to be 'bred out' couldn't this be a disaster for all of us? |
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Self harm and autism
Author : Linda Edge, 5 Oct 2004 17:01
My Grandson is 6 years old, he has severe autism with many of the classic symptoms. He does not speak except for odd words that come only to disappear again.
He hits himself on his thighs and arms and sometimes the face to such an extent that he bruises himself. This is usually when something doesn't happen for him, for example, he cannot get a toy to stand as he wants it to. He is also very self-directed and will start hitting himself if he cannot get his own way or if anyone interferes in his play. |
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Are you going to reply to my posts ?
Author : M.Casey, 5 Oct 2004 17:38
Dear Prof.Bailey,
I am still interested in knowing your opinions on the two posts I have made so far: the post on Amy Nelson's pre-natal screening and my 'Where is the Autistic Voice ?'
M.Casey |
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autism and communication disorder
Author : kathy coleman, 5 Oct 2004 18:12
Dear Professor Bailey, My son is high-functioning autistic and 16 years old. I just discovered my son has a severe auditory processing problem, in fact hes been compensating all of his life. He also has a communication disorder, sometimes the words do not some out correctly. Can this disorder get any better and does it have something to do with his auitory processing problem? Hes a sophomore in high school, in all regular classes with an IEP and resource room for one on one. Hes been on the honor role on his own for the past 3 years. Unfortunately he has not passed his ISTEPS yet, but he is close. When people meet him, they do not even know he is autistic. I did a year and a half of secretin injections and it saved his life. Hes doing so much better than other teens with the same disability. Thank you for your help.
Kathy Coleman |
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Autism and Tics
Author : gaye sherman, 5 Oct 2004 21:10
Can you give me a good resource or suggestions for suporting Autistic individuals diagnosed with tics? |
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